Posts tagged as:

Speech Therapy

Many Ways to Say ‘I Love You’

by Tim on January 3, 2009

As I described yesterday in the “One Syllable At a Time” post, we’re getting some great mileage out of breaking everything down into these syllable-by-syllable exchanges, going as far as dividing one syllable sounds into even smaller parts as needed.

So, much to our eternal and unending delight, the J-Man has two wonderful sentences he likes to say, provided you do the syllable exchange with him.

We have an “I Want” picture board where he can grab a food picture and stick it at the end of the “I Want ____” part (thanks to the velcro). Then we do:

J: “I”
Us: “I….”
J: “wuhhh-uh”
Us: “want….”

And then he tries to say whatever food it is he picked. It’s getting more common for him to put it together without us and say “I wuhhh-uh” before we have to chime in. Yay! When you think about it, you’ll realize what a fundamental part of our development it is to be able to ask for what we want.

But, of course, our favorite is this (said in a rather dramatic volume):

J: “I”
Me: “I”
J: “luhhhh”
Me: “luhhhh…”
J: “vvvvuuuuuhhhhh”
Me: “love….”
J: “yeeeehhh”
Me: “yeee….”
J: “eeee-oooo”
Me: “you!”
J: “Dah-deh”
Me: “Daddy!”
J: “ah”
Me: “and…”
J: “Ma-ma!”
Me: “Mama!”

Believe me, I’m choking back tears just writing this.

[click to continue…]

{ 0 comments }

One Syllable At a Time

by Tim on January 2, 2009

Since we’re still in a post-holiday funk around here and about as lively as the furniture, I’m doing a little content recycling today from a recent comment I made to at least get back to posting. I think all the endless eating and football-watching has killed off a bunch of my brain cells!

Over the last few days, we’ve learned some interesting insights into how to get the J-Man to use some more speech. He is more and more able to give us some idea of how much he understands us and is trying to communicate back to us using a combination of word and syllable approximations as part of what I’m calling ’syllable-by-syllable communication’.

‘Syllable-by-syllable communication’ (my made-up term) has turned into a real winner around here once we pushed him toward it. With this, he communicates one syllable of a word using his best approximation, then we repeat it back to him indicating that we heard and understood him, then he continues with his best approximation of the next syllable, and so on. Following this approach, we’ve gotten through entire sentences, stories, etc. But most of all, we’ve been able to differentiate many words for the first time.

For example, any word that started with ‘m’ used to be ‘muh-muh’ or ‘mo-mo’ or something like that, and he wouldn’t go any further, or we didn’t push him enough to fill in more of the syllables. Now, for example, ‘monkey’ goes like this:

[Note - he tends to get a smidge echolalic with syllables.]

J - “Muh-muh”
Me - “Mon”
J - “kee-kuh”
Me - “key!”

And ‘many’ might go like (with J-Man and I alternating): “Meh-muh”; “Meh”; “Nee-nee”; “Nee!”

[click to continue…]

{ 1 comment }

To preview what Goosie Cards are, visit their web site at GoosieCards.com.

As we’ve chronicled in recent posts (see “My God, He IS Reading!”, “Roy G. Biv”), our son is all about his flash cards lately. They’re not going to displace the Sacred Wooden Letter Blocks of Steadfast Security and Comfort anytime soon, but flash cards are a cornerstone of many of his most important learning activities.

We recently discovered that – at age 3! – he can read many sight word cards (see above posts and “The $64,000 Question…” - and note that he’s trying to read people’s t-shirts now), so Mary and I are all about finding as many different kinds of cards as we can to build on these wonderful skills he’s suddenly developed.

So, in what proved to be a timely e-mail, I was contacted by Tom Stein, COO of Goosie Cards, who asked if I would be interested in trying out some of their cards and reviewing them. This was right up our alley and a great opportunity to try something new with the J-Man, so of course I agreed.

I looked at their web site before the cards arrived and was immediately intrigued (go look now if you haven’t already) but you can’t really appreciate what you’re getting until you hold a Goosie Card in your hand. Once you do, you know immediately that these are light-years beyond the flash cards you get at the store.

goosie-cards-1.jpg

Goosie Card (left) next to other flash cards of two other brands.

The cards are practically bomb-proof. The card stock and lamination are of a quality, thickness, and durability unparalleled by anything I’ve ever seen. I think the only way to make them more durable would be to manufacture them out of slate or paving stone. While nothing is technically indestructible in the hands of a toddler, I don’t know whether anyone - child or adult - could put even a nick on them without using scissors or a hacksaw.

[click to continue…]

{ 3 comments }

Links and Resources

by Tim on October 4, 2008

Links and Resources

Here are some links and online resources we’ve discovered that have been helpful in some way to us. We’re not remotely done compiling this list, so we’ll be steadily adding to it. If you have links you’ve discovered and want to suggest that we add them to our list, please send them to us.

Autism and Autism Spectrum Disorders (ASDs)


Speech Delays, Communication, Apraxia


Sensory Integration Disorder/Sensory Processing Disorder (SPD)


Educational/Behavioral Therapies


Help and Services


Individualized Education Programs (IEPs)


Therapeutic Listening/Other Auditory Therapies


Assistive Technology


Occupational Therapy/Products


Financial Issues


Support and Discussion Groups


Medical


Advocacy Groups


For North Carolina Residents


Other Cool Companies and Products


Other Cool Sites


Random Other Links


 

{ 0 comments }

IEP Results - The Short Version

by Tim on August 26, 2008

Thanks to everyone for the good thoughts and well wishes for today’s IEP meeting. We appreciate everyone’s encouragement!

This is the brief version because we’re feeling baked right now. After all the emotion and stress that gets invested in the IEP process, now that it’s essentially over, all we can think about doing is crashing for the night.

After today’s 2 1/2-hour IEP marathon, we signed all the papers and everyone left with a sense that we had come up with a good plan. If ideal is 100%, I’d provisionally give the result about a 90%. The 10% difference felt like reasonable compromises. We had the perfect scenario in mind and a range in which we’d negotiate, and the result fell somewhere in there.

The main highlight is getting full-day, five-day-a-week preschool, which is sort of the holy grail here. The bonus came in finding out that the “structured learning” class (it’s not ‘autistic preschool classroom’ anymore here) has a much better teacher-student ratio than we had originally been told. They’ve been restructuring how they do preschool for autistic kids here, so people are still figuring it out. It’s three teachers for eight students, which just rocks. We were willing to give a little on services since he’ll be getting more individual attention than we originally thought in the classroom.

[click to continue…]

{ 3 comments }

We haven’t written about our fish oil/Omega-3s experiment in a while. (To catch up on the backstory, view all of the posts tagged Omega-3.) This is mostly because we keep waiting for some revelatory event to help us determine one way or the other whether it has made an obvious difference in J-Man’s progress, particularly with respect to his apraxia and speech development. I’ve read studies that suggest it provides noticeable improvements to other autism-related issues as well, so obviously we’ve been paying attention to that as well.

I noticed that today brings us very close to the six month-aversary of starting fish oil with J-Man. To be honest, I can’t tell an appreciable difference between what I would expect his improvement would have been without it and what it has been with it. Obviously this is hardly a scientific experiment, so take it for what it’s worth, but it’s pretty clearly not been a miracle solution or anything.

Am I disappointed about this? A little. Speech feels like our biggest hill to climb and the one area around which so much of our emotional energy goes. His growth has been slow and steady, but he’s still coming out 18 months or more behind on speech evaluations. Relative to his age, his behind-ness hasn’t changed much since we started the fish oil.

Do we plan to stop using it? No. I’m fairly convinced that fish oil has benefits to our bodies in many areas. I take it myself and think it’s an important part of the supplements and vitamins I take. It isn’t doing him any harm, and perhaps it’s giving him some positive benefits that we can’t readily see.

[click to continue…]

{ 0 comments }

Tuesday we tried something with J-Man’s OT called “Therapeutic Listening” (officially, it’s a trademarked term by somebody). You may have come across this under terms like ‘auditory therapy’, ‘auditory training’, ‘listening therapy’, and a host of other terms. I don’t understand how all this works very well at all, and there are different approaches to make things more complicated in learning about it. Here are some sites that give you an overview. I’d suggest reading them in this order: Vital Links (about Therapeutic Listening ®), Tomatis, Berard AIT, and Samonas (whose website layout is a mess, but that’s another matter).

From what I gather, the above methods vary some from one to the other. The following describes what we did for Therapeutic Listening on Tuesday. Any similarities between my description and the actual science and technical bases for any of these methods may be pure luck on my part. Like I said, this is new to me. It’s the end result that left me astonished, and plenty fascinated to learn more about this.

[click to continue…]

{ 14 comments }

J-E-L-L-O!

by Mary on July 10, 2008

Pepaw (Tim’s dad) came over today to play with the J-man… oh, and to help Tim clean out the gutters. By help I mean, Pepaw held the ladder. Thank goodness!

For some reason, the J-man picks the days that Pepaw is here to learn a new and exciting skill. Today, it was how to spell his name. Yes, it’s difficult for him to say some of the letters, but Pepaw spelled it out with flash cards, and had the J-man read them over and over. Then, Pepaw would ask how to spell J-man. Little Man would say “guh-guh”-”mah-mah”-”aah-aah”-”eh-eh.” That’s right, he would spell out his name. Yes, of course he spelled out his own name and not “J-man.” Why do you ask?

Brilliant child. Of course he is.

Right now he is NOT napping, which I’m not going to fight, since last night he went to sleep at 11:15 (after napping for 2 1/2 hours yesterday). That meant I went to sleep after midnight. He seems to feel better today - yesterday was spent moaning pretty consistently through the day. Poor monkey. Hoping the peaches and prunes Tim picked up will help Little Man’s tummy feel better SOON!

And now, I have the Jello song stuck in my head. Dang it!

{ 3 comments }

Houston, We Have Pretend Play!!!

by Tim on July 9, 2008

In one of those make-my-day moments, during speech therapy J-Man actually fed a bear with an empty spoon after ‘dipping’ the spoon in an empty bowl. So nothing in the bowl or on the spoon, and - shocking newsflash - stuffed bears don’t eat! It’s an abstract, non-literal event! And this is a kid with all manner of feeding issues who is distrustful of most all things culinary. But with some encouragement and direction, he figured out he could pretend to feed the bear without there needing to be literal feeding going on, and he thought it was fun!

If there was one part of the autism evaluation that he basically scored close to zero on, it was pretend play.

He’s never done this before. So….

We now interrupt this news flash for a freak out.

OMG OMG OMG OMG OMG OMG!!!

W00t! Huzzah! Yay!

We now return you to our regular programming.

—-

Today’s new conversation:

“Who’s the man?”

“I-I muh-muh!” (I’m the man!)

The little bits of grace that sneak up on you. The little cures for what ails ya.

{ 4 comments }

And colors too?!

by Tim on July 2, 2008

And now something that should make upcoming evaluations even more interesting…

Apparently, J-Man can identify a handful of colors too. One of our new learning-at-home activities is to do “Point to ____” and give him multiple choices, then repeat that 10 times. We’ve started keeping a notebook and recording how he does.

His progress at identifying letters has improved astronomically. Presented with three choices, he got 30 in a row correct. (Correct = pointed to the correct letter. If it’s one he could say, he almost always said it too.) Let that sink in a second, then keep going.

Each time I would remove the flash cards from his sight, jumble them up, put them back in front of him, and repeat. I would swap in different letters (we didn’t use the same three 30 times or anything) and ask him to identify different letters (didn’t ask him to pick ‘J’ each time, for example, probably did 10 different letters by the end). He still got 30 in a row right. He might have kept the streak going but he declared he was done by getting up and running away.

We haven’t really practiced numbers much, but for giggles we tried that today more formally for the first time. He was fixated on the ‘8′ so I had a hard time getting him to play along, but he did get 4 out of 5 right before taking the ‘8′ card and wandering off.

Interesting tidbit - he still won’t do this with objects. Give him the choice between a book and a ball, ask him to point to the book - more often than not, nada.

So, of course, what’s the next thing to try? Colors!

I started with two choices - green and red. I asked him for green 5 times and red 5 times. (I know that’s not exactly orthodox method, but I was experimenting.) Each time I removed the cards (solid, one-color, construction paper squares we laminated) from his sight and brought them back, trying to randomize the order as best you can with two cards. He didn’t do so hot. Just 4/10. At first, everything he choose was the card on his right. Toward the end, he kept picking green regardless of what I asked for. Was this confusion or him being a stinker (he had that look on his face). Who knows? I made my notes and tried again.

This time I did red and yellow 10 times and asked him to pick yellow each time. Same deal - put the cards in front of him, asked him to point to yellow, took the cards away, brought them back, tried to randomize the order. He picked yellow 10 times out of 10 and never hesitated once in picking it. Dude.

So I tried again with blue and green, asking for green 10 times. Same process as before. He picked green six times (once with his foot), both of them three times (once with both feet), and refused to pick one time. His accuracy went downhill fast; most of what he got correct was toward the beginning. This was an indicator that he was really tired of this game. Still being ticked off and getting 6/10 wasn’t bad.

I wasn’t entirely sure what to make of this, and still won’t until we do colors some more. While I was pondering this, he grabbed the yellow square some time later and said ‘ell-oh’, which totally wigged me out.

Actually there was one more thing to try. His new developmental therapist asked me whether he could identify letters within words (like the ‘a’ in ‘balloon’). I didn’t know. Great question. I hadn’t really tried it. So I tried a couple. We did the ‘e’ in ’sheriff’ (it’s on a little mat in his classroom) and the ‘o’ in ‘cow’ on a flash card. It took him a while, but he did it. Clearly that was a lot harder for him, and I couldn’t really hold his attention to it for more than those two words. Still, darn impressive.

Before I get effusively proud in this post (which I am), I’ll move on. All this got me thinking about future evals. Apparently some of these newly-discovered abilities could be 1-2 years developmentally AHEAD of where he is age-wise, depending on how far and deep and consistent they are. It’s really hard to tell right now as we don’t honestly know what’s going on in his toddler brain, what he’s understanding, and what he’s trying to communicate - problems we’ve had for forever. All that while some of his abilities are pretty clearly 1 to maybe 2 years behind. As long as the schools don’t average all that out and get “he’s functioning at age level”, we’ll be fine. But it should make for some interesting scoring and reporting for the upcoming IEP.

Our speech therapist is going to do another eval of him of her own next week and tell us what she thinks about where he is communication-wise. Her informal opinion at this point is on the order of astonishment. Apparently, this isn’t a situation that happens often at all. A county evaluator who didn’t know him and all this stuff he’s been showing would get a very different picture over the course of the whole, whopping hour they can spend with kids. Since our speech therapist has worked with him for months, hopefully she can give a more accurate picture. We’ll see what that yields. I’m not sure how you decipher the kind of puzzle this is turning into.

Let’s just say, things have gotten a lot more interesting around here. Every day is an even bigger revelation than it was, and that’s saying something.

{ 4 comments }