Sick

Trying to Get Perspective

by Tim on November 29, 2009

These past weeks have been a serious reality check for us. All of us have been sick, hurt, or both at one point or another. Not surprisingly, this has weakened both our physical and emotional defenses. That’s a nice way of saying that we’ve turned into a bunch of grumpy, rundown, sick people who aren’t coping well.

I tend to process things best by writing about them. This has been one of those periods where every time I sit down to write, my brain just locks up like an overloaded computer. If nothing else, I guess it’s made me appreciate perhaps a little of what days are like for those of our kids whose brains are overwhelmed most of the day every day.

It recently became evident that we were losing control of most facets of our life. The J-Man was obviously experiencing some significant changes to his sensory system, and seemingly none of them for the good. He seems to shoot wildly between wide-open, screechy, running around, stimming overload to almost totally shut down. It’s hard for him to find a happy medium. That on top of all of our physical and emotional wear-and-tear and stress so thick you could cut it with a knife, we’ve been fast reaching an unsustainable place in life. And then last week it became really clear that it was worse than we thought. (More on that in a second.)

[click to continue…]

{ 6 comments }

Pause

by Mary on November 10, 2009

The Flashlight family had one of those weekends, and it has carried into this week. We went “big grocery shopping” on Saturday (good thing!) and Tim mentioned a couple of times that he felt funny. I assumed it was a Man Cold (YouTube link) but is seems to have been something much unfunnier. He has spent the last 2 days trying to keep down water. We’re up to watered-down Gatorade and bouillon for him. YUM!

Funny conversation Sunday night:
Mary: (grabbing the cup on the edge of the bathtub) You want some of this Gatorade?
Tim: (answering from somewhere down inside the bowl) I think the cat may have drank out of it. Do you think it’s still OK?
Mary: NO!

The boys both have colds – a newborn having a cold is just AWESOME, y’all! Plus, since we went to Dale Jr’s 6 month appointment last week (which is probably where we all picked up the germs), and were roundly scolded for not having him already on “3 meals, plus a snack,” of solid foods, we’ve been trying to shove more food into him. And that? Has resulted in unpleasant tummy. Screaming, crying, straining, unpleasant tummy. Today I tried adding prunes to the mix, and have decided we’ll have to work up to those 3 meals plus snack.

The J-man is constantly wiping his nose with his sleeve, which means that he has a sore spot underneath his nose, and some serious cheek chappage. I wish there was some way to teach him to blow his nose, but I can’t figure it out. It’s not like he’s going to mimic me doing it. He’ll also hand us a tissue and ask for “no z” but that just gets the tiny bit under his nose, and doesn’t really help because right after we use the tissue, he swipes with this sleeve again anyway. He’s been watching WAY too much Laurie Berkner and Signing Time, but that’s about how much I can handle while carrying around the other sick baby.

And then there’s me. I’ve been OK, except getting a cold, but am being worn down by the lack of sleep, and keeping up with 2 sick kids and 1 sick husband. I now sound as though I am a 55-year-old, 40 pack-a-day smoker.

Thank goodness for Pepaw who came over on Monday, and for my friend Elly who came over on Sunday night when I thought I might have to take Tim to the ER.

We’ll be back!

{ 5 comments }

I wish I had some brief, non-whiny-ass way of talking about this, but it’s just going to be what it is. This is a subject many of us avoid because we don’t want others to think we’re weak or talking negatively about our life as parents. But tonight I feel like being honest about it.

Someone once gave me the most appropriate term that I think exists for how I’ve felt the last few days.

I am bone-weary.

It’s a good thing I recently read an absolutely brilliant blog post by Rachel Coleman (aka Rachel of Signing Time!, also aka J-Man’s Secret Crush) called Strong Enough to be Your Mom. I highly recommend you go and read her moving story.

The day after the J-Man’s annual pediatrician’s visit about two weeks ago – where I had to carry him around for an hour and do some awkward holds during the exam – I started to feel a building pain in my low back. And it just got worse and worse. Within hours of when it started, it got to where I couldn’t bend more than a few degrees from vertical in any direction. I couldn’t sit and I certainly couldn’t sleep. I took some ‘real’ pain pills (which I only do when it’s really, really bad), and I might as well have been eating candy.

[click to continue…]

{ 5 comments }

I just realized it’s been a week since we last posted. Yikes!

The last few days have felt rather like survival mode. Little E has awful reflux, so none of us are sleeping. We’re on our third medication now, which had to be compounded and the only compounding pharmacy is 30-40 minutes away. That doesn’t sound like much, but at rush hour and being so tired that I’m not even sure I’m driving in an actual lane, that was a real struggle. We just feel terrible that he’s having to suffer through this, and we also feel like less-than-great parents for not being able to fix it.

In the meantime, the J-Man has been showing some signs of realization that this whole brother thing is a permanent condition. He hasn’t had any negative behavior toward the baby at all. He is starting some attention-seeking stuff, which is completely understandable. It just makes me feel bad when I’m trying to soothe a miserable baby by walking him lap after lap around the house with the J-Man following behind me and looking sad like we’re all in this sort of ‘blah’ parade around the downstairs.

He had a unusually prolonged tantrum this morning about not getting his cookie (which he doesn’t eat, just carries it around until it’s mush) until he had breakfast. (“First breakfast, then cookie!” – didn’t work…) That was no fun on so little sleep. It’s rather odd that our traditionally poor sleeper is the only one in the house actually getting any sleep at night.

He’s also been doing more of the running back and forth and hollering thing, which is a bit like a cross between ‘I’m overloaded’ and his full-body, whirling dervish, stim-fest. I don’t think it’s at a worrisome level, just something we monitor to get a better sense of his overall mood. He continues to do great at school. If things deteriorated there, I’d start to worry that things were heading south on us. If he struggles within all that structure, that’s not a great sign.

Interestingly enough, all these changes seem to be bringing about improvements in his communication. It’s almost like he feels he needs to try harder to get his point across with the baby around. At one level, this makes me a little sad that perhaps he feels he’s being left out, but the communication itself is a positive thing. We’ve also been able to change a few other routines (like bath time) without much incident. So we’ve seen a lot of positives, even if perhaps they are born out of a lot of stress for him.

Of course, all it takes is for our kids to express one of their frequent moments of cuteness to soothe our tired selves and keep us going until one of these days we finally get some sleep and everything hopefully returns to some sort of equilibrium. Until then we have cute kids and coffee!

{ 1 comment }

Bragging While Dragging

by Tim on February 26, 2009

This cold that’s going around like wildfire here has knocked me flat most of the week. I’ve been dragging along OK, but any ambitious plans – blogging or otherwise – are just toast this week.

But I will take a minute to brag on the students of all three of the autism classes at our elementary school.

We went to our big, local kids museum here yesterday on a field trip. And when I say ‘we’ I mean all three autism classes at school (Pre-K, K-2nd grade, 3rd-5th grade), which is about 20 kids total. Given that this museum is pretty much like the Hawaii of school field trips in our city, it’s always teeming with children. Wednesdays seem to be your best bet, but it was still pretty crowded.

Our gang was basically doing their thing (playing with the model trains, sorting fake produce in the pretend grocery store, racing models cars down the ramps, playing in the ball pits, and the usual things you’d figure they like) with barely a fuss let alone any big meltdowns or anything. I know our teachers are awesome, but dang!

Contrast this with the barely-contained anarchy going on around us. I occasionally had to serve as the J-Man’s force field to prevent the running, screaming, largely oblivious kids from plowing into him. One of them came within inches of impaling me with a hockey stick. He wasn’t intending to do me an injury, but I highly encourage the Catholic church to make obliviousness at least a venial sin or something. Needless to say, we hauled tail through the ‘real tools’ play area. Seeing kids sawing wood with real hand saws was plenty enough warning for me.

[click to continue…]

{ 6 comments }

This is the cold that never ends…

by Mary on February 17, 2009

It just goes on and on, my friends.
Some people started sneezing it
Not knowing what it was
And they’ll continue sneezing it
Forever, just because
This is the cold that never ends…

That’s where we are folks. Stuck here in the land of Girl Scout camp songs and Ayla-lore about why cough medicine is cherry flavored.

I STILL have this cold, although I am much much better than I was – I no longer sound like Isaac Hayes, and can generally sleep at night. Tim, on the other hand, is now absolutely miserable. I truly thought he was immune, because he didn’t get it for so long. I guess maybe karma was agreeing that having both of us sick at the same time would be too much.

In pregnancy news, I am now officially in the 3rd trimester. I go in today for the glucose tolerance test. It’s a truly disgusting drink of essentially non-carbonated soda, with an extra cup of sugar added to it. With my pregnancy with the J-Man, they only had the orange flavored kind, and I hate orange flavored soda, so it was extra yuck. I’ve been assured of lemon-lime flavor this time, which I can only hope will not make me hate Sprite from here on out. I do this test because I have several risk factors (I’m old, I’m fat, and I’ve had a big baby before, even though I didn’t have Gestational Diabetes with the J-man).

[click to continue…]

{ 1 comment }

He’s the One They Call Dr. Feelgood…

December 3, 2008

One line summary – J-Man has a rip-roaring ear infection. Blech. It’s always alarming when you see your kid’s teacher’s cell phone number pop up on the caller ID. They don’t send kids home from our Pre-K unless they’re practically near death. The teachers pride themselves on being able to handle anything, and largely they [...]

Read the full article →

Oh Croup!

November 10, 2008

[Ed. note - Today was so incredibly awesome that we both felt the need to write posts about it independently...] For about a month now, the J-man has had an off-and-on cough. It would go away for a bit, then come back, usually with no real other symptoms. Sunday night though, that cough wouldn’t stop. [...]

Read the full article →