Religion

Autism Beatitudes

by Tim on October 11, 2010

I was skimming back through some writing I’d done a while back and stumbled across the following. Funny how you can forget you wrote something! I rather liked it and hope you do too. As with other things I’ve written, I wish to qualify this by saying that I’m aware I write from a parent and advocate’s perspective and that writing ‘on behalf of autism’ like this contains my own biases. I’d be interested – here or in general – in being called on my biases by any autistic persons who wish to do so.

These are meaningful to me as a parent, and I hope they are to you too.

Autism Beatitudes

Blessed are those who do not speak, for they shall teach us what lies beyond the limits of words.

Blessed are those who wholly focus on the simplest things, for they shall see wonders no one else can.

Blessed are the spinners, for they shall experience life from every angle.

Blessed are the picky, for they know exactly what they want.

Blessed are the stimmers, for they shall grow their wings and fly.

Blessed are those who always take the same path, for they are steadfast and true.

Blessed are those who are faithful to their rituals, for to them all the world can be a holy liturgy.

Blessed are those who repeat themselves, for they shall savor every sound and silence in between.

Blessed are the persistent, for they shall triumph where others have given up.

Blessed are those who are devoted to a single passion, for they shall explore depths no one has ever seen.

Blessed are those who memorize every detail, for they preserve that which would otherwise be forgotten.

Blessed are those who fight to be heard and accepted, for they shall safeguard the rights of all.

Blessed are those who watch and wait, for they shall discover and know and understand.

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A Prayer of St. Francis for Autism

by Tim on April 1, 2010

It’s April, so welcome to Autism Awareness Month! I wanted to start things off by coming up with something that would set the tone for the month, and I decided that if I was going to do that, I might as well do something completely different.

There’s a prayer attributed to St. Francis of Assisi – one of the most beloved prayers in Christianity. It has spoken to multitudes across generations as both a prayer and a simple, guiding set of principles of how we can transform the lives of others and the world for the better. Its other gift comes from how much its message has transcended religions and individual religious beliefs.

So it is obviously plenty good enough on its own without me mucking around with it, but I wanted to reframe it a bit to be more specifically about our daily lives whether we are parents of autistic persons or autistic ourselves. Even at the risk of profound arrogance in tinkering around with one of the great pieces of literature in human history, I did it anyway. You can decide whether it says something to you or if I should have just left well enough alone.

First, the original Prayer of St. Francis:

Lord, make me an instrument of Thy peace;
where there is hatred, let me sow love;
where there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
O Divine Master,
grant that I may not so much seek to be consoled as to console;
to be understood, as to understand;
to be loved, as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying that we are born to Eternal Life.
Amen.

I’m not sure how you follow that timeless classic, but here goes.

A Prayer of St. Francis for Autism
by Tim Tucker

Lord, let thy peace fill me up until I overflow;
that where people cannot speak, I may be their advocate;
that where anyone is rejected, I may extend my arms in welcome;
that where parents are heavy burdened, I may offer a word of comfort;
that where our children struggle, I may lift them up and cheer;
that where some see disability, I may reveal to them extraordinary gifts;
that where others judge, I may share with them my deep gladness;
and that where any are overlooked, I may help the lights of all to shine.

O Giver of These Gifts,
grant that I may not so much seek to be reassured as to reassure;
to be praised, as to praise;
to be accepted, as to accept;
for it is in all our uncertainty that we are inspired to hope;
it is in great challenges that we discover our greatest joys,
and it is in our community of wanderers that we find the way home.

Amen.

[click to continue…]

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What Christmas Means to Me This Year

by Tim on December 24, 2008

As I talk to other parents who are making their final preparations for Christmas, it reminds me that in our family, we are writing our own story. J-Man seems to have little – if any – understanding of what Christmas is, why there’s a tree in our living room with white lights on it (though he digs it a lot), why people give him stuff he’s never seen before and why we ask him to pull paper off of them in the first place.

We can buy presents with him in the store with us and put them out in full view under the tree for a week and he doesn’t care one way or the other. There’s no going to tell Santa – or even us – what he wants for Christmas. There’s no searching all over the house for gifts we’ve hidden. There’s no singing along to Christmas carols. There’s no, “How many days until Christmas, Daddy?” or “Is it Christmas Eve yet, Daddy?” Tomorrow will likely be like any other day for him.

I would be lying if I said I didn’t feel sadness about this. And I would be lying if I said that there isn’t a part of me that wishes we could share those things together.

But one thing he’s taught us to remember is that Christmas really has little to do with any of those things. Because of him, I’ve come to finally get deep down that Christmas is about hope coming in the unlikeliest of circumstances.

I am not normally one to wax religious on this blog, but whether this story is part of your beliefs or not, I think it speaks to a fundamental desire in all of us to be able to believe that something incredible can come even from the last place you’d ever expect. Given the transformation of human history that would follow, it was not how you would have expected this child’s story to begin 2,000 years ago.

But by retelling it every year, we learn and re-learn that out of the humblest beginnings can arise something beyond anyone’s furthest imagination. We are reminded that hope and grace can bloom and thrive in places many people would never think to look, and even from places where people consciously decide that nothing of worth could possibly come.

This is why the story of Christmas means so much more to me now. Our family’s story did not begin as we expected it to, but we’ve discovered that uncertain beginnings are not permanent obstacles. They instead take us on a journey that transforms us as parents every day and brings goodness and light into our little community in the world. And who can even know where it might take us next.

The entire season of Advent is one of waiting and hoping, imagination and expectation. We discover that it’s not just for one day but that every day brings with it untold possibilities. In a little over four months, our second child will join us, and we’ll begin the next chapter of this great, unpredictable, exciting adventure we’re on. Meanwhile, we wait, with no small amount of uncertainty, but also no shortage of joy and hope.

All we know right now is that we have a little light and some rough directions and little else to go by except a driving sense of trust and belief that if we travel as far and as long as it takes to get there, we will discover things beyond our every hope.

In our Christmas story, the child stacks blocks and arranges crayons and never takes a step without two of something in his hands. The donkeys, cows, and sheep are packed away unnoticed in the corner. He swaddles himself in pillows for comfort. And then in an unexpected moment, he glances up in a temporary moment of peace as if to say, It’s time to go write a new story; go get my crayons.

So – full of wonder, fear, and expectation – that’s what we’ll do.

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Reflections on Good Friday

by Tim on March 21, 2008

In its own way, it seems fitting that today is Good Friday. There are symbols and themes that go along with this day that speak to how I feel about everything going on with us.

People either skip over Good Friday on the way to Easter or don’t bother to contemplate what that Friday was really like before anyone ever knew there would be an Easter.

It’s not about what will happen but what has happened and what that feels like right now.

Good Friday is about believing that things have turned out in the worst way you could imagine. It’s about once having all of this hope and then feeling like everything fell apart. It’s about being told it would happen and not believing it until you saw it with your own eyes. It’s about people’s entire view of the world and their role in it one day abruptly ending, left instead to wander aimlessly and reinvent your life. It’s about believing you were promised one thing and then having it taken from you. It’s about feeling you’re going to be shunned from this day on by society. It’s about believing from now on, you’re on your own.

It’s about the story not ending like it’s supposed to.

I think most of theology can be summed up in one word – ‘but’. I’m a writer, so I tend to see things through the lens of language. Today, I see God as the Great Conjunction.

I once believed our lives would follow a certain path, but instead a different one lies before us.

On that first Good Friday, everything fell apart, but the sun came up that Saturday, and then that Sunday, and then that Monday, and every day since.

One of the most powerful forms of speech in the Bible (depending on the version you read) goes like this: “You have heard it said that… but I say unto you…” Things will be transformed, but we’re not there yet. I’m still carrying around a lot of anger.

Good Friday is about being in the moment before the ‘but’, long before there is any hope that it will come. I may be stuck on Friday for a while.

I completely broke down Wednesday when I was giving J-Man a hug and said “I-IIIIIII… Looooooooooove” and then he gave me a kiss. I barely got the “you” out before I choked on tears.

I believe J-Man will be a living example of how to put things back together again. As frustrated as he gets, I know his stubborn, determined streak. If there is a way, he will find it. Right now I’m having a hard time believing in much, but I know I believe in him. And for now, that is enough.

If he could talk, I could see him saying, “You may say that there will be things I can’t do, but I’ll have something else to say about that.”

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