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Numbers

In our last IEP goals recap from last quarter, the J-Man had a great nine weeks overall and showed great gains. This past quarter just ended last Thursday, and our little superstar continues to make great strides toward what we thought were some pretty ambitious goals for this year.

As a refresher for those curious about how we do things around here, the quarterly evaluations are done based on how well the kids are progressing toward meeting their IEP goals for the entire year, and then they’re assigned an evaluation code based on the following scale:

1 – Insufficient progress to meet IEP goal by end of year; below expected mastery of goal at this point in the year
2- Skills are emerging; mastery of goal is still inconsistent; student needs support to meet goals
3 – Consistent progress toward goals; on track to meet annual goal
3* – Consistent progress toward goals + some evidence of application and independence (Not sure why they need another 3 score here, but whatever. “Application and independence” are definitely two words we like.)
4 – Annual goal has been mastered; able to generalize the skill independently in multiple settings.

As I mentioned last time, don’t ask me why they felt the need to add a 3* in between 3 and 4 rather than just fix the scale to begin with. But anyway…

We rounded the halfway mark of this year early in March, so in light of that, his progress toward goals he has a few more months to meet is awesome.

Here are those categories and all the great stuff he’s been up to lately.

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The Perfect Toy?

by Tim on March 8, 2009

It’s been a long few days of continued sicknesses and traveling out of town – which by the way went pretty well by our travel standards – so we’ve been slow to report much in the way of what’s up around here lately. (Pretty much just sickness, pregnancy, school, and work if you’re really dying to know.)

At Mary’s parents’ house, we discovered what may be the ultimate J-Man toy!

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Numbers and words and wheels, oh my! What’s not to love?

He carried these around pretty much everywhere. He had a bazillion little cars to choose from at their house, but he always chose these two. Just for fun, I looked through the pile of other cars and none of them had such a combination of numbers and words. No mystery here!

Also not surprisingly, we rediscovered over the weekend that Wheel of Fortune is also a huge hit with him. Big letters stay on the TV screen for long periods of time – it doesn’t get much better than that.

Note to J-Man – I am NOT putting numbers and sponsors on our car. Well, on second thought, find us a rich sponsor and I’ll consider it.

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Fun With Folder Games!

by Tim on January 14, 2009

Because 99% of the stuff in a toy store isn’t really made with the learning needs of autistic children in mind (not likely gonna see “For reading levels 6 and up and speech levels 1 and up!” on a toy) and because there’s no telling what the J-Man will play with and what he won’t, I’ve started making ‘folder games’.

These are just very cheap learning games made from manila folders, velcro dots, and other stuff that you can for the most part find around the house, or for almost no cost at the store. And when you’re done with them, you can just fold them up and slide them on a shelf.

The ones I’ve made lately center on matching words with objects (e.g. a square of one color, then he puts the word under it – or vice-versa) with some number and letter matching thrown in too. This seems like a big leap in mental effort for him, so his attention span is lower. But that’s just how he normally is with newer challenges, so it’s nothing unusual. He perseveres and soon amazes us with the things he can learn.

So I’d like to show you three examples of these folder games. I think the entire cost for these three activities took less than $2 out of the supply budget plus the time it took us to make them. And as a bonus, the folders themselves are reusable for countless other activities I haven’t finished yet.

Folder_Game_1.jpg

This is just a manila folder with eight velcro dots stuck in it – four for the color squares, which are made from construction paper – and four for the label strips, which I printed off my computer as sheets of about 20 words each and then cut them out. All of these things are laminated with matching velcro dots on the back so they’ll stick to the folder.

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We had our end-of-quarter Parent/Teacher Conference yesterday, and we all celebrated how great the J-Man is doing in school.

Since IEPs are all about annual, specific, measurable goals, these four-times-yearly conferences with the teacher are about seeing how he’s meeting the measurements established by those goals. This allows you to make mid-course corrections as needed, argue for more services if your child is way behind on meeting their goals, etc.

It also allows you dedicated time with the teacher to learn all the ways you can supplement your kid’s learning at home. Of course, we’re always working on that with the teacher, but since these meetings occur at the end of the quarter and in year-round school the end of the quarter means three weeks out of school, this is about coming up with strategies to keep the learning going during the break. Combined with the holiday, we actually have 5 1/2 weeks off starting Monday. Yikes!

The classroom he’s in is about way, way more than just the goals on the page, of course, but the IEP is both a good instrument for measuring progress and one of the most important ways of showing what sorts of services and classroom your child needs from year-to-year.

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To preview what Goosie Cards are, visit their web site at GoosieCards.com.

As we’ve chronicled in recent posts (see “My God, He IS Reading!”, “Roy G. Biv”), our son is all about his flash cards lately. They’re not going to displace the Sacred Wooden Letter Blocks of Steadfast Security and Comfort anytime soon, but flash cards are a cornerstone of many of his most important learning activities.

We recently discovered that – at age 3! – he can read many sight word cards (see above posts and “The $64,000 Question…” – and note that he’s trying to read people’s t-shirts now), so Mary and I are all about finding as many different kinds of cards as we can to build on these wonderful skills he’s suddenly developed.

So, in what proved to be a timely e-mail, I was contacted by Tom Stein, COO of Goosie Cards, who asked if I would be interested in trying out some of their cards and reviewing them. This was right up our alley and a great opportunity to try something new with the J-Man, so of course I agreed.

I looked at their web site before the cards arrived and was immediately intrigued (go look now if you haven’t already) but you can’t really appreciate what you’re getting until you hold a Goosie Card in your hand. Once you do, you know immediately that these are light-years beyond the flash cards you get at the store.

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Goosie Card (left) next to other flash cards of two other brands.

The cards are practically bomb-proof. The card stock and lamination are of a quality, thickness, and durability unparalleled by anything I’ve ever seen. I think the only way to make them more durable would be to manufacture them out of slate or paving stone. While nothing is technically indestructible in the hands of a toddler, I don’t know whether anyone – child or adult – could put even a nick on them without using scissors or a hacksaw.

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I’m one of the first people to encourage other parents to chuck the milestones books out the window. The ones that tell you what your child should be doing at 75.34 weeks to me do little except make you increase your antacid budget every month. The obvious exception to this is that if you suspect that your child is very delayed in one or more areas, go figure that out both through reading and with your pediatrician and other professionals. There’s a big difference between being 1.8 weeks behind and 18 months behind.

This is probably a blinding flash of the obvious for parents of kids with delays, but after a few months in Early Intervention and therapies and whatnot, you completely lose touch with what ‘developmentally normal’ is. It really is a time warp. At this point, I would have a hard time telling you how far behind our son is. We’re doing things on J-Man Daylight Time and ignoring how most of the rest of the planet tells time. He’ll do it when he does it, has become our motto (at least on our good days).

With J-Man showing some exceptional skills in some areas in the midst of being very delayed on most everything else, we’ve felt the need to go back and figure out what ‘normal’ is for an almost-three-year-old. At a parenting level, I’m not sure how much I’m concerned about this at this point. Like I said, he’ll get there when he gets there, at least I keep telling myself that. However, for purposes of getting him into preschool and doing his IEP, we need to get some handle on where he is (that Present Levels of Performance thing – with the wonderful acronym PLOP).

It’s hard to find to milestones charts that translate well into autism-ese. The obvious problem is that your autistic toddler could easily be two or more years plus or minus what is developmentally ‘normal’ for a three-year-old on these charts. He or she will likely be scattered all over the chart. You have to transpose quite a bit with them, but after thinking through it a bit, I still could get a rough idea.

At the bottom of this post are some links I found to help us get started. Hopefully they’re useful to you as well. I can’t vouch for their complete accuracy or anything, but they’re consistent enough with each other for what I was looking for.

I did discover that J-Man’s letter identification is probably on par with a level of 4-5 years old (he’ll be 3 in a couple of months if you just got here), just minus the ability to say some of them. If he’s in a relaxed state, he can point to any letter you ask for. Lowercase still confuses him for a good half of the letters, but that’s understandable. He’s getting there with numbers and has consistently identified five colors (again, when he’s in a relaxed state). With colors, I usually give him three to choose from (solid-color, construction paper squares) and ask him to point to ‘red’ or whatever. If he goes 10/10, he’ll get the proverbial gold star and we’ll start trying to identify colors in other contexts.

[Worth nothing that if you say something like "point to the green frog" he just stares at the floor. Combining a color and an object - 'green frog' - is too much to sort through as he has to figure out what's green and what's a frog at the same time. So, we just do "point to green" at this point.]

The key is the ‘relaxed state’. If he’s calm, he can do this stuff one to two years beyond age level. Otherwise, it’s a lost cause. Hitting that sweet spot is hard, which is as much the battle as anything. This is totally a sensory processing issue, which we’re working on constantly.

OK, enough of my rambling on. Here are the links I stumbled on. These center on speech, language, and literacy milestones. If you know of others, let us know.

http://www.capitolent.net/speech-milestones.htm

http://www.horizonspeechcenter.com/milestones.html

http://www.madison.k12.wi.us/tnl/lilm/early_literacy/preschool/milestones3-5.html

http://www.childcarelounge.com/articles/xlearningleteracy.htm

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And colors too?!

July 2, 2008

And now something that should make upcoming evaluations even more interesting…
Apparently, J-Man can identify a handful of colors too. One of our new learning-at-home activities is to do “Point to ____” and give him multiple choices, then repeat that 10 times. We’ve started keeping a notebook and recording how he does.
His progress at identifying letters [...]

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Actually, he does!

June 30, 2008

Today I heard the J-man count to 10! Yes, 1-7 were mostly “cuh-cuh” but when Tim got to 7 and the J-man said “ayyyy” and then Tim repeated “eight,” and the J-man said “niii” I just about wet myself.
Not that I knew this the other day when I was grousing about the whole incorrect minutes [...]

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