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IDEA

OK. I’m thoroughly confused. I can’t find a straight answer on exactly what the latest ‘compromise’ is, but from what I’ve been reading, it sounds like special education funding was salvaged to something back to its original funding levels. This is in spite of the overall pool of money going to states toward overall stabilization of their massive budget shortfalls being cut significantly.

It looks like school infrastructure investments got hit hard, though. I can’t find any reliable information about other disability services and vocational programs at this point. If you know what the heck is going on, I’d love to hear from you.

And as a general comment, if you know someone concerned about funding special ed not stimulating the economy, you should tell them about the massive backlog of everything in the school systems and county agencies, the complete lack of adequate numbers of teachers and therapists in the vast majority of counties, and argue that, hey I bet hiring more people would help some of this!

Whatever passes the Senate – presumably by Monday – will lead to a group of Senators and Representatives locking themselves in a room for a conference committee and hashing out what will ultimately go to President Obama’s desk. Conference committees are confusing things. At least I don’t understand them. Though it seems like anything from tax rebates for bloggers to investments in alternative energy from harnessing methane from cows could be in that final bill for all we know at this point.

Anyway, enough soapboxing. None of this is a done deal, so keep contacting those who represent you in Congress!

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[Update 2/7/09 - If you came to this post directly from Google or somewhere else, go read the latest update.]

I’m dumbstruck by this, but I guess we shouldn’t be surprised.

A group of Senators from both parties has been working to reduce the size of the Stimulus Package by $100 billion dollars. Not surprisingly, the biggest chunk of that is coming from special education, school infrastructure improvements, Head Start, disabilities services funding, and related areas. IDEA funds are currently being cut in half from the proposed original amount. Much of the rest is completely gutted.

It looks almost certain this ‘compromise’ is going to be part of the final Senate bill.

We have two hopes here. First, The Arc has put out the alert and provided a tool by which to contact your Senators. Go to their Action Alert page, type in your zip code, and you can find out how to call from there. It’s too late in the game for writing now. You gotta call. They will most likely be voting on this today or this weekend.

Our only other hope is that because the House version and the Senate version of this legislation aren’t the same, this will likely end up in a conference committee of the two branches of Congress. Here they can hash out the differences before it’s sent to the President, which means funding could be restored since it’s in the House version. I don’t understand all the rules and semantics of conference committees, but there is still hope there.

I don’t know what to say beyond that. Get busy people. As usual, it’s up to us.

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Today the U.S. House of Representatives passed HR 1, The American Recovery and Reinvestment Act of 2009 – otherwise known as the Stimulus Package – by a vote of 244-188. Unless I completely missed something, all the disabilities-related provisions survived and were passed along with everything else. Yay!

Among other funding provisions in the legislation, some highlights are:

  • $13 billion (with a ‘b’!) for the IDEA State Grant Program
  • $600 million for Early Intervention
  • $300 million for teachers in general
  • $20 billion for school renovations and modernization
  • $500 million for state grants for construction and rehab of facilities that help persons with disabilities prepare for gainful employment
  • $200 million to assist people with disabilities to live in their communities
  • $2.1 billion for Head Start
  • $2 billion for Child Care Development Block Grants
  • Billions for Medicaid, which is getting crushed under the weight of everyone now unemployed – including parents of special needs kids who have lost their jobs and have had to fall back on Medicaid to have any chance of affording their children’s treatments and therapies.
  • Extension of unemployment benefits up to 33 weeks

and much more.

I am under no illusion that any of this is free money. However, people need to differentiate between government spending that invests in people, jobs, resuscitating the economy, and other things that bring a big return for each dollar spent vs. government spending that is like flushing money down the drain, like millions spent on research studies that conclude that oxygen really is good for America’s cows.

I don’t know everything that’s in this legislation, but I do know that the above provisions and many others are about investing in our children’s future – regardless of their abilities – and helping people who struggle to develop the skills needed for gainful employment realize that dream.

End of soapbox. Now go start writing your Senators. I put some tips in my previous action alert.

So far, the above provisions are largely – if not entirely – intact in the Senate version. However, things can change, and this is by no means an easy road for this legislation. Write your Senators even if you think they’ll certainly vote for it or against it. They need to hear our voices!

Thanks for your efforts so far. Keep up the good work!

If anyone has additional information, please post it in the comments.

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[Update - House passes it 244-188! Now go write your Senators!]

OK, people. If you haven’t contacted your Representative in Congress, it’s time to move! The U.S. House of Representatives will debate HR 1, The American Recovery and Reinvestment Act of 2009 – otherwise known as the Stimulus Package – TOMORROW (Wednesday, January 28th in case you actually read this tomorrow). You still have time to contact your Representative!

If you missed my previous action alert, start by reading the Justice for All blog for more information about funding provisions in this legislation for services related to the Individuals with Disabilities Education Act (the IDEA we know and love), Early Intervention, and myriad other services for children and adults with disabilities.

Folks, this is our best – and maybe only – chance to save these services from being slashed and crippled by the budget nightmares affecting our local and state governments. These contacts to Congress may be the most important messages you write this year.

If you’re in a hurry, you can head over to The Arc for a ready-made letter you can send to your Congresspeople. However, if you can carve out 15-20 minutes, I think personally written messages are more effective. Feel free to use The Arc’s letter as a model, but tell a little about your story and ask for their support in your own words. One personal message can often be as effective as dozens of form letters.

Remember, be direct, to the point, and respectful, and tell them why this is important to you. Ask them to both support this legislation and ensure that the funding for these services that are critical to our children’s future remain part of it.

Find your Representative and your Senators and contact them! Most of them have easy-to-fill-out web forms to submit your message. Note – newly-elected members of Congress may have e-mail addresses rather than forms, but their page will tell you.

The Senate will begin debate on this legislation some time after it moves through the House, and it looks like tougher sledding in the Senate. So it’s important to contact your Senators very soon!

You already know this, but we are our children’s best advocates. It’s up to us. Start writing!

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[Update 1/27/09 - It's crunch time! Go read this update!]

While I was feeling a little wait-and-see earlier today about what we’d be able to accomplish legislatively for autism, special education, and disabilities in general in this economic climate, I just discovered there’s plenty of hope to go around! But we must act now!

The much-talked-about Stimulus Package before Congress has in some of its current forms many funding opportunities for federal investment in disabilities programs! Read the Justice for All blog for more information, and then head over to The Arc for a ready-made letter you can send to your Congresspeople.

Better yet, find your Representatives and Senators and call or send them a note personally!

The time is now! This is a major opportunity for us, so get writing!!

Oh, and do it for my cute, snowy, happy kid who refuses to wear gloves!

jman-snow1.jpg

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President Obama and Autism

by Tim on January 20, 2009

Critical Update! Go read my action alert about the Stimulus Package before Congress!

At precisely Noon today, the White House web site officially switched over to the Barack Obama Administration. It’s important that we keep track of policies that directly affect us as parents of autistic children and stay committed to our efforts to advocate not only for our own children but children everywhere. So here are some links you’ll want to be aware of.

The Obama Administration’s statement on disabilities – The statement on Autism is at the bottom of the page (nice to see it mentioned specifically). I don’t think they’ll mind if I post it here too.

Autism

President Obama and Vice President Biden are committed to supporting Americans with Autism Spectrum Disorders (“ASD”), their families, and their communities. There are a few key elements to their support, which are as follows:

  • First, President Obama and Vice President Biden support increased funding for autism research, treatment, screenings, public awareness, and support services. There must be research of the treatments for, and the causes of, ASD.
  • Second, President Obama and Vice President Biden support improving life-long services for people with ASD for treatments, interventions and services for both children and adults with ASD.
  • Third, President Obama and Vice President Biden support funding the Combating Autism Act and working with Congress, parents and ASD experts to determine how to further improve federal and state programs for ASD.
  • Fourth, President Obama and Vice President Biden support universal screening of all infants and re-screening for all two-year-olds, the age at which some conditions, including ASD, begin to appear. These screenings will be safe and secure, and available for every American that wants them. Screening is essential so that disabilities can be identified early enough for those children and families to get the supports and services they need.

Source: WhiteHouse.gov

The Obama Administration’s statement on education – The statement on the Individuals with Disabilities Education Act (IDEA) – which is the cornerstone, foundation, and the entire building for that matter with regard to the rights our children have to a free appropriate public education – is at the bottom of that page. I’ve included it here too.

Students with Disabilities

Obama and Biden will work to ensure the academic success of students with disabilities by increasing funding and effectively enforcing the Individuals with Disabilities Education Act, and by holding schools accountable for providing students with disabilities the services and supports they need to reach their potential. Obama and Biden will also support Early Intervention services for infants and toddlers, and will work to improve college opportunities for high school graduates with disabilities.

Source: WhiteHouse.gov

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Most All Autism Politics is Local

December 4, 2008

I saw this over at Little Bug Words and wanted to spread the word on this great resource.
The National Conference of State Legislatures has a database of autism-related legislation recently passed or currently being considered, listed by state, category, and current status. This is a fabulous way of keeping up with what’s going on [...]

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Obama and McCain on Autism Spectrum Disorders, Education, and Health Care

October 30, 2008

I had intended to write some sort of analysis of the Presidential candidates and their policies relating to autism spectrum disorders, education, and health care. After I wrote some of it, I realized that’s an epic topic somewhere on the order of “How carbon has influenced the evolution of the Earth.”
So, I’m going to point [...]

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