“Is love available even here?”

June 24, 2014

A wise friend of mine has this tattooed on her wrist. It reminds her of one of the most fundamental questions we must ask ourselves when life goes to pieces and hope seems so far away.  This question has come to me often in our many hours in the pediatric oncology clinic. Of all the […]

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When It Falls Apart

May 2, 2014

It has been a long time since I’ve written anything. Life for us has turned into a never-ending series of challenges, challenges unlike any we’ve ever faced. As some of you know, I was hospitalized in Michigan right before Christmas for almost two weeks in an intensive program to try to cure my 24/7 migraines. […]

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An Open Letter to Autism Speaks

November 17, 2013

[note: This is in response to the recent statement issued by Autism Speaks.] Dear Autism Speaks: My child is not missing. He is right here. I just put him to bed a few minutes ago. Nighttime is one of our most precious times together. I sing his favorite songs and say our ‘nighttime words’. Some […]

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Caring for Your Older Autistic Sibling

October 18, 2013

I realize I haven’t talked a lot about our younger son, who we call Dale Jr. here. He’s now 4 1/2 years old and is exceptionally bright and observant for his age. He misses almost nothing, and is routinely telling us about all the new insights he comes to. Not a day goes by that […]

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I Am Disabled

October 9, 2013

I am disabled. There. I said it. And today is my 40th birthday. And I’m coming out of hiding so that something good can come of this. As you may have noticed, I have been absent for several months from blogging. I have popped up occasionally on Facebook, Twitter, and Instagram, but mostly I’ve been […]

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