Comments on: When the Only Thing Routine is the Lack of Routine http://www.bothhandsandaflashlight.com/2009/06/02/when-the-only-thing-routine-is-the-lack-of-routine/ Two parents, one autistic toddler, a new baby, half a clue, and just enough light to see by Thu, 11 Mar 2010 15:23:02 +0000 http://wordpress.org/?v=abc hourly 1 By: Tim http://www.bothhandsandaflashlight.com/2009/06/02/when-the-only-thing-routine-is-the-lack-of-routine/comment-page-1/#comment-7512 Tim Tue, 09 Jun 2009 02:55:55 +0000 http://www.bothhandsandaflashlight.com/?p=805#comment-7512 Dominique, Thank you SO much for your comment! Sorry we've taken forever to respond, but that's apparently how we're going to do things for a while. Your comment could not have come to us on a better day. Much of last week and this weekend were really rough around here - the kind of rough where you just pray for the strength to scrape yourself off the floor and keep moving. It's no one thing that's done it, but a combination of various things that seem to have knocked me to the mat lately. The word you used - helpless - really captures it. It's the kindness of people like you who help us keep our heads up and carry some of the burden for us when we need it. We hope we are able to do likewise for others. I know things will improve - they always seem to - but in the chaos around here lately, perspective is limited to about 30 seconds either side of where we are at any given moment. When I lose that broader perspective, things get very hard for me to deal with. Thanks for helping us see beyond that. Today was quite a good day, one of those signs you look for that the clouds are starting to break. We're thankful for people like you who help us pull our heads out of the ground so we can look and see the little victories when they happen. We'd love to hear more of your story if you do get time to tell it someday. Again, thanks. Your words meant a lot to us. Dominique,

Thank you SO much for your comment! Sorry we’ve taken forever to respond, but that’s apparently how we’re going to do things for a while.

Your comment could not have come to us on a better day. Much of last week and this weekend were really rough around here – the kind of rough where you just pray for the strength to scrape yourself off the floor and keep moving. It’s no one thing that’s done it, but a combination of various things that seem to have knocked me to the mat lately. The word you used – helpless – really captures it.

It’s the kindness of people like you who help us keep our heads up and carry some of the burden for us when we need it. We hope we are able to do likewise for others.

I know things will improve – they always seem to – but in the chaos around here lately, perspective is limited to about 30 seconds either side of where we are at any given moment. When I lose that broader perspective, things get very hard for me to deal with. Thanks for helping us see beyond that.

Today was quite a good day, one of those signs you look for that the clouds are starting to break. We’re thankful for people like you who help us pull our heads out of the ground so we can look and see the little victories when they happen.

We’d love to hear more of your story if you do get time to tell it someday. Again, thanks. Your words meant a lot to us.

]]> By: Dominique http://www.bothhandsandaflashlight.com/2009/06/02/when-the-only-thing-routine-is-the-lack-of-routine/comment-page-1/#comment-7437 Dominique Thu, 04 Jun 2009 18:20:39 +0000 http://www.bothhandsandaflashlight.com/?p=805#comment-7437 Hi. I am a longtime 'lurker' on your blog, and I wish I could express how much support I have felt from your musings. I am sending you both tons of support and good vibes in this very demanding time of having a newborn. I found your blog when I was overwhelmed with my own newborn who also had various tummy issues and who knows what else. One day I may have the time to tell you the whole story, he is now 11 months old and doing much better. I have found different supports in my home city much of it related to various information I garnered from your blog. I did a ton of research when he was little, and one of the first places I found as a starting point was your blog. Even though we were not having exactly the same experience, it was your family's attitude and perspective and ongoing love in the face of challenges that really helped inspire me through difficult times. Your blog also led me to many other links and related materials that greatly helped me out. So it is at this challenging time with your newborn that I am sending you prayers and love and support. I want you to know that like your blog, which helped me feel not so alone, you are not alone in this sometimes difficult journey. (I know you know this, but I wanted to say it from my heart anyway.) My little guy cried an enormous amount and hardly ever slept, and it can really make a mother feel helpless, so I empathize hugely with Mary and her 'recliner nursing'. Just know that many people are wishing you well in their prayers as I know for sure that so many people that have felt supported trough your writings are now holding you in their thoughts. I am envisioning lots of good sleep in your future! Tons of love to Little E, J-man and your whole family. Hi. I am a longtime ‘lurker’ on your blog, and I wish I could express how much support I have felt from your musings. I am sending you both tons of support and good vibes in this very demanding time of having a newborn. I found your blog when I was overwhelmed with my own newborn who also had various tummy issues and who knows what else. One day I may have the time to tell you the whole story, he is now 11 months old and doing much better. I have found different supports in my home city much of it related to various information I garnered from your blog. I did a ton of research when he was little, and one of the first places I found as a starting point was your blog. Even though we were not having exactly the same experience, it was your family’s attitude and perspective and ongoing love in the face of challenges that really helped inspire me through difficult times. Your blog also led me to many other links and related materials that greatly helped me out. So it is at this challenging time with your newborn that I am sending you prayers and love and support. I want you to know that like your blog, which helped me feel not so alone, you are not alone in this sometimes difficult journey. (I know you know this, but I wanted to say it from my heart anyway.) My little guy cried an enormous amount and hardly ever slept, and it can really make a mother feel helpless, so I empathize hugely with Mary and her ‘recliner nursing’. Just know that many people are wishing you well in their prayers as I know for sure that so many people that have felt supported trough your writings are now holding you in their thoughts. I am envisioning lots of good sleep in your future! Tons of love to Little E, J-man and your whole family.

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